Thirty Years In — And Still Learning

I’ve been living with Chronic Kidney Disease for over 30 years.

In that time, I’ve experienced what I think of as the CKD trifecta — peritoneal dialysis, haemodialysis, and a transplant that lasted just over a year. Today, I’m back on haemodialysis.

That sentence alone carries a lot. But this isn’t a story about endurance for the sake of it. It’s about perspective — the kind you only earn by being in it, day after day, year after year.

When you’ve lived with CKD this long, you start to notice patterns. Not just in lab results or treatment cycles, but in the experience itself — the gaps, the frustrations, the small things that could be better but somehow never quite are.

Information exists, but it’s often overwhelming, clinical, or disconnected from real life. Tools exist, but they don’t always feel like they were built by someone who understands what it’s actually like to live this.

So I decided to try and build something.

Not something perfect. Not something abstract. Something genuinely useful. Something that could make even a small, tangible difference in someone’s day — whether that’s understanding a lab result a little more clearly, making a better food choice without overthinking it, or just feeling a bit less alone in the process.

This project is not just mine. It’s a collaboration — shaped by lived experience, shared insights, and the understanding that no single person has all the answers in this space. CKD has a way of humbling you like that.

What we’re building is meant to grow. To be refined. To be challenged. To be shaped by the very people it’s for.

And that’s the part I’m most excited about.

We’re launching this in May, and I’m incredibly grateful to have reached this point. Not because it’s finished — but because it’s starting.

If you’re living with CKD, supporting someone who is, or just curious about what this space can become — you’re part of this now.

Let’s build something that actually helps.